So we finally got the tapes from my hearing last April which means we can now move forward with the appeal for when I became disabled. I'm waiting to hear from my lawyer now. I called today and she was busy. Hopefully she'll call back soon. We have 25 days to submit all extra information that has been acquired.
For now I just wait.
This blog is about the trials and tribulations of being a young woman with chronic pain and illnesses. I will talk about not only things going on now, but things that have happened in the past, the constant thoughts I have because of being a pain patient, and the stresses of living life day to day like this. My hope is that it will help other pain patients see they aren't alone, especially those who are in their early to mid twenties like me.
Thursday, May 24, 2012
Saturday, April 28, 2012
I have been having a hard time writing much of anything lately. I don't have the energy or the want to. Everything is so high stress and messed up right now. I feel like it might be helpful to let people know that all of this emotional strain does happen when you are fighting a disability case. I think waiting is the worst part. You don't know when and you don't know what will happen, but you know it is coming.
I've unfortunately also been shown, once again, that some friends are not in it for the long haul no matter what they say to you. Be wary, because most will leave. And they don't really care about the damage they cause by doing it. Someone could tell you a million times they love you, but it doesn't make them mean it when you need it most. I will survive this somehow and I will remember.
As Will Smith wisely said: If you're absent during my struggle, don't expect to be present during my success.
I've unfortunately also been shown, once again, that some friends are not in it for the long haul no matter what they say to you. Be wary, because most will leave. And they don't really care about the damage they cause by doing it. Someone could tell you a million times they love you, but it doesn't make them mean it when you need it most. I will survive this somehow and I will remember.
As Will Smith wisely said: If you're absent during my struggle, don't expect to be present during my success.
Thursday, April 12, 2012
Losing it
So I talked to my attorney today on the phone and apparently when I get married, there is a very real chance I will lose all of my disability benefits. And I am not dealing with this well at all. I feel like all of the fight is gone from me. I just want to give up completely.
Tuesday, February 28, 2012
Update
So, now to do an actual update. I think I've been avoiding it because I don't want to face it. The last couple of months have been hard. I've watched my health decline even more, to the point that dinners have been hard to deal with. That's supposed to be my territory, we agreed when we moved in together. And I have been dropping the ball so hard.
I'm just trying to focus ahead, deal with the wedding details, and try and tell myself it's going to be okay.
I'm just trying to focus ahead, deal with the wedding details, and try and tell myself it's going to be okay.
Monday, February 27, 2012
Lets talk issues
I'm not the type that usually gets into politics. I vote mostly in the bigger elections, and I stay away from the news channels/sites because it just makes me all so mad. But I am a democrat, and I do watch certain key things (like the health care bill).
But this election has made it impossible to stay out of it. The republican side has some very specific things they are trying to achieve even before the elections happen. So this election I've decided that rather than stay on the sidelines, I'm just going to say what I'm feeling and thinking.
1. If birth control were a male thing, and the men were the ones dealing with it, this would not even be an issue. As far as I'm concerned, men really have no say in what we do with our bodies. When they have gone through bleeding every month, when they have dealt with the cramps, the loss of iron, the emergency room for iron and dehydration, or bleeding non-stop for 6 weeks (or in my case, every other week), then they can have a say. Until then, shut the fuck up.
2. I support Planned Parenthood and everything they do. It is much more than just abortions. They deal with breast and uterus help (cancer screenings included), birth control, STDs, rape victims, sex education, miscarriages, and prenatal help.
And yes, I'm pro-choice.
3. We need to be finding better ways to be dealing with domestic violence, and one of those ways is NOT by making it harder for police to arrest the perpetrator. If they find a woman or man who has visible marks from being beaten, YES the perpetrator should be arrested, and NO it should not only be if the police see the beating happen. What the hell is wrong with you?
4. Yes, there needs to a separation of church and state. And no, you don't get to put your religious beliefs on your employees.
and finally....
5. Gay people are human beings. They deserve the same rights and every else.
But this election has made it impossible to stay out of it. The republican side has some very specific things they are trying to achieve even before the elections happen. So this election I've decided that rather than stay on the sidelines, I'm just going to say what I'm feeling and thinking.
1. If birth control were a male thing, and the men were the ones dealing with it, this would not even be an issue. As far as I'm concerned, men really have no say in what we do with our bodies. When they have gone through bleeding every month, when they have dealt with the cramps, the loss of iron, the emergency room for iron and dehydration, or bleeding non-stop for 6 weeks (or in my case, every other week), then they can have a say. Until then, shut the fuck up.
2. I support Planned Parenthood and everything they do. It is much more than just abortions. They deal with breast and uterus help (cancer screenings included), birth control, STDs, rape victims, sex education, miscarriages, and prenatal help.
And yes, I'm pro-choice.
3. We need to be finding better ways to be dealing with domestic violence, and one of those ways is NOT by making it harder for police to arrest the perpetrator. If they find a woman or man who has visible marks from being beaten, YES the perpetrator should be arrested, and NO it should not only be if the police see the beating happen. What the hell is wrong with you?
4. Yes, there needs to a separation of church and state. And no, you don't get to put your religious beliefs on your employees.
and finally....
5. Gay people are human beings. They deserve the same rights and every else.
Thursday, February 9, 2012
Quote
"If you're absent during my struggle, don't expect to be present during my success."
-Will Smith
-Will Smith
Friday, January 20, 2012
Lots of work!
Okay, so I have all of the chapters figured out up until 2007. Still a
lot of work to do. I'm going to get the outline done, and then write,
and then figure out from there whether I need to cut down on chapters
(which, based on how many I have so far, I will probably need to. That
or I'll need to combine some of them. I don't know.... would you read a
book that has around 40 chapters? lol)
I'm doing pretty well with it though. There is a lot I know is worth skipping because it's just silly filler stuff. And then I know certain chapters are definitely necessary. And daddy seems willing to help just by talking to me about all the things that have happened. It's nice to hear other perspectives. It makes it more rounded.
I'm also working on putting all the invitations together for the wedding so all I have to do when 2 months before hits is throw them in the mailbox.
I'm doing pretty well with it though. There is a lot I know is worth skipping because it's just silly filler stuff. And then I know certain chapters are definitely necessary. And daddy seems willing to help just by talking to me about all the things that have happened. It's nice to hear other perspectives. It makes it more rounded.
I'm also working on putting all the invitations together for the wedding so all I have to do when 2 months before hits is throw them in the mailbox.
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