Written by my friend Ash Trent.
I wanna take a minute to talk about mental illness. I
have battled with it my whole life, and maybe it would help to hear
about it from someone you know. Or don’t know. Either way, I assure you
that I am someone.
The shooting at Sandy Hook elementary school last week shook us
all to the core. It was a visceral reality check that we wanted to
reject, waiting to hear that the media overreacted and the kids were
safe. What happened next was an uproar about gun control, school
security and finally mental health. Adam Lanza was mentally unstable,
and that does NOT make his actions on that day okay or excusable. Adam
Lanza is not the issue here. We can’t undo what he did. What we can do
is use it to help us prevent a repeat.
You see, mental illness is a treatable and manageable issue.
However, the way it is viewed in our society puts a dark shadow over it
that makes it difficult to treat and manage. I know firsthand how the
insensitivity of this truth can affect someone with a mental illness. We
spend our lives marginalized, minimized, ignored and kind of treated
like a joke. We’re seen as melodramatic-- “Why can’t you just let it go?
It’s all in your head and you’re blowing it out of proportion.” We’re
seen as attention-seeking-- “Stop feeling sorry for yourself.” We’re
seen as trying to make our situation worse than it is-- “Everyone goes
through that! Just go back to work and carry on.”
What’s worse is this is the kind of response we get both from people who truly and inarguably care about
us and just don’t want to think of us suffering and from people whom we
simply annoy. We get the same responses from everyone, and it hurts!
What we have is not just a problem, I assure you. It’s a sickness. Where
it comes from, we don’t know. Maybe we were born that way, or maybe we
experienced something so terrible that it physically changed our brain
chemistry and wiring. And yes, we absolutely have the responsibility to
change ourselves and pull ourselves up, because there is no other
option. Contrary to popular belief, however, we can’t just shake it off.
There are things we need from the people who love us when we are sick.
Let’s start with a basic issue: Depression. I’m pretty sure we
have all at one point experienced the godawful curse of the flu. You
know, you wake up one morning and you’re just so damn tired you almost
can’t get out of bed, you’re aching all over, and you just feel this fog
that is intercepting your thoughts so that you can’t put them into
action. You feel moody and agitated and you even entertain thoughts of
telling your boss to shove that stupid project up his ass. Then, a day
or two later, you start coughing and sneezing and you can’t breathe and
it’s really, really gross. And it lasts for like two weeks and the whole
time you just want to beat your head against the wall. Everyone thinks
you’re being a total dick, and you just have to sit tight and wait for
it to pass.
Imagine the flu, but you never start coughing or sneezing. Just
tired, achey and cranky, and there’s really nothing you can do about it
except maybe go to the doctor and eat pills that aren’t really all that
effective. Sometimes it lasts a helluva lot longer than a couple
weeks... and, just like the virus, you just have to wait it out. And
everyone thinks you’re being a dick. That’s what a depressive episode is
like. I know it’s similar, because every time it hits me I wonder for a
moment if I’m getting the flu. I’m hoping I start coughing and wheezing.
A lot of times when you go through a heavy bout of depression
and you try to talk to someone, they’re not exactly...understanding.
You’re explaining to them why you’ve been acting a certain way, and it
really, seriously is the reason you’ve been what they perceive as “a
real bitch/asshole.” Hearing that...it really hurts. You’re not being an
asshole or a bitch, you’ve been sick! It’s really a sickness, and you
didn’t do it on purpose. Believe you me, when I get that way I would
love to just buck up and get over it, and I sure as hell would if I
could. I’m probably having even less fun with it than you are. And when I
try to explain that I’m so sorry but I just can’t, it’s always the same
shit:
“We all have bad days, but we all just deal with it
anyway.”“Everyone feels like that sometimes! Just watch a funny movie,
that’s what I do!”
“You were fine a couple weeks ago, I don’t know what pissed you
off so bad but you better get over it.”“You’re being dramatic.”“You’re
looking for attention.”“You’re making excuses.”
“Why don’t you go to a psychiatrist and see if he can give you an antidepressant?”
“Hit the gym! That always cheers me up!”
Listen, with all due respect, we know [most of] you mean
well, and we really and truly do love you for it. But we don’t need you
to tell us to get over it, because we know it’s not that easy and
honestly it feels really bad when we’re told we can just... do that. We
know you really believe we can, and we know you can’t understand what
we’re going through. We know it hurts you to see us hurting so much, and
it scares you that we’re so angry. I promise you that if it were that
easy we totally fucking would do all of that. But it takes time, and
honestly the best frontline combatant for us is support.
Support doesn’t mean we want you to do things for us when we
can’t. Support doesn’t mean we want you to tell us that everything we’re
doing is fine, acceptable or okay, because sometimes it just really
isn’t. Support means saying, “I know I can’t understand, and I’m not
going to pretend I can, but I’m always here to listen if you need to
talk,” and then following through with that.
I’ve touched on Depression here, and I want to point out that
there are tons of other mental illnesses, none of which are really any
better or worse than Depression. Anxiety disorders (Obsessive-Compulsive
Disorder, Post-Traumatic Stress Disorder, Social Anxiety Disorder),
Schizophrenia, Personality Disorders, Bipolar Disorder, Autism Spectrum
Disorders (although those are more developmental disorders than
illnesses), they all feel this way in one way or another. And all of the
popular responses from loved ones on the subject hurt like hell.
It gets worse, though. Not only is our legitimate sickness
disregarded by people who care, it’s even further disrespected by people
who don’t. Even our insurance companies and employers refuse to
recognize it. When we need to apply for disability, for instance,
sometimes our diagnoses are regarded as “untreatable,” or even worse
“not valid,” or they are considered “not debilitating.” A lot of health
insurance companies don’t cover mental health, no matter how much money
you pay them. Let me tell you, I would work my ass off if I could. I’m
not taking work off because I feel like it, I’m taking work off because
I’m seriously terrified I might snap and hurt myself. I’m sleeping in
through my first four hours of my shift because I literally can’t make
myself get up. That’s not just because I’m sad or scared, it’s because
it has physical manifestations that make me super tired and very sore.
Remember the flu analogy?
When we already feel tired, sad, scared, run down and tired, it
just fans the flames when we are so misunderstood and invalidated.
People want to know why we’re acting this way, and the answer is a
simple “I just don’t know.” It’s a very real sickness, and no one should
ever have to apologize for being sick. And yet we are always
apologizing so profusely when we’re already feeling bad about ourselves
for seemingly no reason. To be pegged as a bitch/asshole, lazy, stupid,
entitled, or otherwise weak when you just don’t feel good is not a walk
in the park. After all this invalidation, when we do snap, people are
left wondering why. What the hell was wrong with that asshole? Probably
not enough God. Probably lack of gun control. Probably not enough school
security.
I disagree. I think that if our insurance companies covered
mental health treatment, if our society didn’t treat us like lepers, or
if we weren’t treated as drama queens by the people we want so badly to
hear us, we might not spiral quite so far. We get tired of explaining
ourselves. We get tired of our cries for help falling on deaf ears. It
hurts, and for some of us it makes us unreasonably angry, and then we
lose control and people get hurt. Most often ourselves. All the
ignorance and insensitivity only adds to what the sickness already does
all by itself. We do all we can, and now it’s your turn, everyone. A
difference isn’t going to be made in the mental health cause if it’s
only the mentally ill calling for a change, any more than it’s going to
help if the cows picket the beef industry.
I’m hoping that some people who know me will read this, and
realize that this is my life. I have tried time and time again to make
something of myself, and it’s just so very hard when I am not afforded
the chance to do so because of the challenges I face. I do not consider
this an excuse; you all see that I keep trying and I promise I’m nowhere
near giving up. I see the struggles I face every day, obviously, and
when I see these things in the news, most recently the Newtown tragedy, I
know that it’s because so many people lead lives like mine. I know that
this has all been said and that some who read this won’t take this
seriously either. I just really hope, from the bottom of my heart, that
you are reading this as coming from someone you care about, or even
would like to know better, and I hope that it makes you think. Let’s
treat each other differently, whatever obstacles we face. Let’s open our
eyes, and let’s allow love to be the cure.
This blog is about the trials and tribulations of being a young woman with chronic pain and illnesses. I will talk about not only things going on now, but things that have happened in the past, the constant thoughts I have because of being a pain patient, and the stresses of living life day to day like this. My hope is that it will help other pain patients see they aren't alone, especially those who are in their early to mid twenties like me.
Friday, December 28, 2012
Thursday, December 27, 2012
Weekly Inkblot
Ellie and I will be starting up a new youtube series called "Weekly Inkblot." It will be every Friday at 7pm, and we'll be talking about mental health awareness, what it is, different therapy styles, medication, the struggles with family and friends, and so much more. We will be on air on Google+ Hangout. I'm putting this up because we'd be happy to have other people join us. If it's just us every once in a while, that's fine, but it's always nice to have different perspectives. I'll set up the event every week, so let me know if you want an invite to the events. Come if can, watch if you can't. :)
I'll post the youtube video every week here too.
I'll post the youtube video every week here too.
Wednesday, December 5, 2012
IOP and Affirmations
Emily (counselor in charge of my group at IOP) wants me to find some
pride in the fact that I have been working hard and using a lot of the
coping mechanisms, but I told her it's hard to look at it during a bad
day and say "yes I've done a good job!" because I don't feel like I
have. So she has given me some personal homework: I have to make an
affirmation (in this case it's "I am worthy of love and happiness") and I
have to say it to myself 3 times a day.
That's definitely not what I believe, but I guess we can use it as an experiment to see if this affirmation shit can work.
That's definitely not what I believe, but I guess we can use it as an experiment to see if this affirmation shit can work.
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